PRIMARY CARE
Recommendation 1
Check for other vascular congential abnormalities
Recommendation 1
Upper endoscopy study, a swallowing study, CT scan or MRIRecommendation 1
Upper endoscopy study, a swallowing study, CT scan or MRIRecommendation 1
Asymptomatic, no treatment needed. SymptomaticRecommendation 2
may need surgery.Recommendation 1
Check for other vascular congential abnormalitiesRecommendation 1
No specific physicians specialize in this condition, often managed by peds and vascular/CT surgery. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
None are available, but can sign up to be notified when one becomes availableFollow to receive regular updates to the latest research development on this disease via email newsletter.